Monday, February 24, 2025

Ailing

An inevitable event every new parent dreads is the first time their baby gets sick. But a less remarked on, but almost as frightening prospect is the first time you, the parent, gets sick while caring for a baby.

This past week, my keratoconus has been acting up. Looking back on my chart notes from the last time this happens, it appears I have corneal hydrops, which starts manifesting as dry eyes and quickly progresses into significant eye irritation, light sensitivity, and extreme tearing (the other day tears literally started jetting from my eyes when I woke up). In my case, these symptoms also come alongside sinus symptoms on my left side -- so my left nostril is running and I have pain in my left orbital socket and along the teeth the upper left part of my jaw.

Being "sick" (I'll address the quotation marks in a moment) is never fun, but it is far less fun when you have an infant in your care. When it's just you and/or your fellow adult companion, you can kind of slough off your responsibilities temporarily until you're feeling better. No reasonable person will hold it against you if you push back a deadline or skip out on making dinner. In most cases, your loved ones will be able to shuffle some of their responsibilities around to help you. You get taken care of.

But an infant is, of course, quite needy, and it can't press pause on its needs to accommodate yours. If I need to tap out of my evening care shift, my wife has to take it, and then she isn't getting the sleep she needs. If we need to go to the doctor's and I'm not up to driving, then she has to drive, which means he has to come and she has to be up to driving, which, again, is harder when she's getting even less sleep than normal because I'm out of commission. The normal feeling of bodily vulnerability is accentuated because one also feels a little more trapped than usual. There's an extra layer of emotional unpleasantness that is a poor complement to the physical unpleasantness.

The saving grace right now is that I don't have an infection or anything else that could be transmitted to my baby. So at least I don't have to worry about that.

But in classic me-form, that got me thinking about linguistics. How do I generically (but not too generically) describe my condition? Stipulate that "not feeling well" is the umbrella generic term covering all health related reasons why one might, well, not feel well. Under that umbrella, there are some more specific terms.

For example, saying I'm "sick" feels wrong because sickness, to me, refers to an infection. If I told people I was "sick", they'd immediately assume I had some sort of bug. Perhaps more broadly it can include being made unwell by any foreign substance (hence why food poisoning or, for that matter, regular poisoning still to me qualifies one as being "sick"), but it still wouldn't fit what's happening here.

Likewise, Jill suggested "injured". But that for me suggests some discrete moment of trauma that I endured. If I got hit in the eye with a baseball and it felt like this, then I'd be injured. A flare-up of a chronic condition, not triggered by anything particular I'm aware of, doesn't seem to fit.

So -- if your chronic condition does develop a novel complication that makes one feel especially unwell, what are you. Not sick, not injured. "Ailing" also works, but feels too Victorian. Is that the best we can do?